Privacy Policy

Effective Date: January 1, 2026

We are committed to protecting your family's privacy. We only collect the minimum data necessary to provide support and conduct research. We do not use cookies or tracking to collect usage data.

Data We Collect

• Contact Info: Name and email for Contact Us inquiries.
• Care Packs: Shipping information is required to deliver requested supplies.
• Travel Assistance: We collect contact information, provider details, income attestation, and travel verification (such as a Clinic Letter). We verify medical specialties using the NPI Registry. Important: Please ensure that child names and specific medical diagnoses are not included in any of your submissions.
• Research Inquiries: Name and email for research inquiries.

Children's Privacy (COPPA)

Our services are intended for parents and guardians. We do not knowingly collect personal information directly from children under the age of 13. If we discover we have inadvertently collected such data, we will delete it immediately.

Research Sponsorship

As sponsors, we do not access any patient data.

Legal Use & Disclosure

We use your data for:

• Program Fulfillment: Delivering assistance and supplies.
• Compliance: Meeting IRS recordkeeping requirements for charitable distributions.
• Safety: We never sell, rent, or trade your data. Disclosure occurs only if required by law or to protect against fraud.

Security Standards

All sensitive documents are transmitted via MailHippo, an end-to-end encrypted service, to ensure your information remains secure during transit.

Data Retention & Your Rights

We retain financial assistance records for 7 years to comply with federal audit requirements. Under state and federal laws, you have the right to:

• Access & Correct: Request a copy of your data or update inaccurate info.
• Delete: Request removal of your data, subject to legal retention periods.

Contact Us

For questions or to exercise your rights, please contact us through our Contact Form.